I've spent thousands of dollars on Occupational therapy for my son
who has had Sensory Processing Disorder and ADHD. I believe in
Occupational Therapy and who knows where we'd be if we didn't have the
OT. But I've found how to integrate it into our life, and save us some
money.
My son loved OT and I know the many benefits that he
received from it. But it didn't come without a struggle. Each session
was $60 per half hour, or $120 an hour. I loved seeing him thrash around
in the mats, swinging on the swings or spinning, running and jumping. I
knew that he was getting mental benefits as well as physical and we
continued the work at home by doing jumping on the trampoline, wheel
barrels and crab crawls. But the money I was spending without being
reimbursed started to cut into other things I wanted to do for my son.
For instance, I wanted to get him allergy testing, but that $1300 for
the test was something I'd have to save for, so we cut out OT.
I've
made hundreds of little changes in our lifestyle over the past year and
a half since I became somewhat educated about my child's needs. It
truly has been a series of trying something and seeing if it worked, and
trying another to see if that worked. Some days, it seems we have moved
forward several steps, but then we can take several steps backwards in
one day, or one giant, dramatic episode.
Here are a few things
I've learned about my son. I need complete structure in the house and
with his routine. He gets up at a certain time, eats, bathes and does
story time every day and every night. We have to plan far in advance to
do something out of the ordinary, and the whole house has to be set up
to accommodate that. That means, if we have cub scouts or basketball
practice, then the house has to be clean before he gets home and I will
focus 100% of my time on him before he goes. If we have a play date, the
date wraps up at exactly 5PM so I can get home and get dinner on the
table by 6:15 and have him in the tub by 7PM. His bedtime is strictly
8:30 and there is no negotiating.
I've learned that I have to
spend more time with him in the afternoon. I get all of my work and
chores done during the day around my work, so when he gets home, I play
with him and part of that play is his OT. He jumps on the trampoline, we
box, wrestle, go hunting for treasures in the yard or go for a walk.
The afternoon routine always consists of homework and exercise.
I
have learned that TV and play dates with other kids are rewards. For
good behavior, he can watch a cartoon. He does not get to plop down in
front of the TV whenever he wants or turn on the computer. He has to do
his home work and gets to play with friends if he has good and we
usually plan these play dates. We do this so there is not much
stimulation and there isn't a lot of chance where he can get over
stimulated.
All throughout the morning and day and evening, I rub
Jeremy's muscles. I scratch his back and affectionately massage his
legs, arms or feet. In the bathtub I scrub him with a washcloth and he
always makes sure that I get under his armpits! That wash cloth takes
the place of the OT brush and the massage he gets throughout the day
must help too. He doesn't seem to complain about it because I tell him
we want to warm up his muscles and keep him in shape.
I have asked
Jeremy to help me get in shape so we do push ups together, crab crawls
and bear crawls. We race each other and we compete. In the evenings or
in the mornings, I have my husband wrestle with Jeremy or have Jeremy
try to push my husband over by pushing his hands against my husbands'
hands. This helps with the upper body strength and is similar to wall
push ups. The wrestling is good for his body as well and acts like the
mats in therapy.
Bath time used to be the worst time of the day.
Getting him in and out of the tub was a literal nightmare. I dreaded it
for the hour before bath time. Now, I give him choices. He can stay in
the tub for the whole time or he can get out and watch 15 minutes of TV.
He has choices to make and it doesn't matter to me which choice he
makes, it is up to him. He usually gets out the tub to watch a few
minutes of TV. I have stopped screaming for him to get out of the tub. I
simply give him a choice of two things: tub or TV. If he chooses to
stay up for longer than he is supposed to, then he loses a play date
with friends the next day. If he gets in bed on time, then he gets a
special reward and I'll make a special play date for him the next day if
I'm able.
We've experimented with no dairy, magnet therapy,
supplements and tae kwan do. We've done allergy testing, toxin testing
and are hoping to do Mind mapping in the near future. My goal is to get
him off of any type of ADHD medication. We'll keep doing different
therapies until we've found the magic potion of what works for him. We
regularly read healing scriptures and the Psalms in the Bible.
We
are on a journey together and I'm definitely not "there" but I have
learned a few things along the way. I've learned that my child needs me
to keep him comfortable and needs me to structure his life. I've learned
that yelling isn't the answer and that building up his body is a
process but it's one that is worth the effort. I've learned that putting
him first above everything else has worked for me. My career is on
hold. Marketing is on hold. Moving ahead with dream projects are on
hold. Jeremy has my complete and full attention at the moment.
I've
never worked so hard in my life. I don't even eat sugar or drink
alcohol much anymore because it might affect my mood and I just don't
have time to slow down. I do many of my workouts at home with hand
weights, pushups and lunges because I know I need to be strong for this
journey.
My son has made me into a better person. His challenges
that he had early on due to a premature delivery has made us all work
harder in our life. But I see a remarkable person developing right in
front of me. He's smart about nutrition and exercise. He understands the
value of hard work. He sees that when he eats well and exercises that
people comment positively on his body. He has such in depth knowledge of
historical bible characters from the cartoons, that he often shares
pearls of wisdom with me from the leaders of the Bible. He understands
that everyone is a little bit the same like that we all have skin, eyes
and hair, and that we're all a little different, in our attitudes,
beliefs and actions.
I feel honored to have a child that has had
challenges in life out of the gates. He changed my attitude of
entitlement to one of hard work and commitment and devotion. I would
never give up the last several years of incredible struggle and learning
that we've gone through. Now I know what it takes for him to have a
good day. It takes muscle work, good food to feed his body, reading to
him, being with him and loving him.
Sensory Processing Disorder is
a situation that can cause families to be in crisis and have chaos.
When the kids are whiney and uncomfortable and mom and dad aren't
sleeping, the whole family life is turned upside down. There is hope
though, and I hope one day I'll be able to say that all of my
discoveries are things that worked over the long haul, but for right
now, they seem to, and I'm going to continue to integrate our OT,
healthy eating and nurturing of my son into our daily routine.
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